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Four real people with HAE. Four unique stories. deflate HAE Together

Discover how HAE and its management burdens their lives

Select a real person living with HAE to watch their story

People representing different HAE patient stories
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Andjela

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Emma

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Gabby

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Jamie

Real people living with HAE.

Discover how HAE and its management burdens their lives

People representing different HAE patient stories

Real people living with HAE.

Andjela profile icon

Andjela

Married with two sons, trauma nurse,
diagnosed with HAE at age 27
Video poster
Opening quote
Some people didn’t believe I had a
disease; they thought I was exaggerating
my pain or that it was all in my head.
Closing quote
Emma profile icon

Emma

Medical school student,
diagnosed with HAE at age 24
Video poster
Opening quote
If I am starting to have a swell, I tend to stay
home. I just don’t like to be seen in public
because it’s not something I can hide.
Closing quote
Gabby profile icon

Gabby

Recently engaged,
diagnosed with HAE at age eight
Video poster
Opening quote
I predominantly swell in my hands and
in my stomach. And hand swells make
it difficult to start your own IV.
Closing quote
Jamie profile icon

Jamie

Married with three sons, two have HAE,
language arts teacher, diagnosed at age 20
Video poster
Opening quote
HAE has disrupted my job, my
friendships, and my everyday life.
Closing quote
Woman holding balloons representing Tolerability, Convenience, & Efficacy

Burden of HAE Management

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References

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