This content is not meant to replace a conversation with a healthcare provider. A healthcare provider can evaluate your symptoms and make the appropriate clinical decisions.
Real Stories.
Real Reasons to Expect More.
See the real stories of navigating HAE and the trade-offs of disease management.
Select a real person living with HAE to learn about the cost of compromise
Select a real person living with HAE to learn about the cost of compromise
GABBY
Treatment troubles
JAMIE
Parenting past the panic
ANDJELA
Having to prove the pain
EMMA
Sidelined by swelling
KEVIN
Medication frustration
GABBY
Recently engaged, diagnosed with HAE at age 8
If I had a treatment that would be easily administered, that day could have
been different.
Learn about Gabby’s treatment troubles
JAMIE
Married with three sons, two with HAE, language arts teacher, diagnosed at age 20
HAE has disrupted my job, my friendships,
and my everyday life.
See how Jamie parents past the panic
ANDJELA
Married with two sons, trauma nurse, diagnosed with HAE at age 27
Some people didn’t believe I had a disease; they thought I was exaggerating my pain or that it
was all in my head.
See why Andjela often has to prove the pain
EMMA
Medical school student, diagnosed with HAE at age 24
There’s always just a feeling of dread, of just waiting. How quickly is it going to progress in
the time it takes to work?
See how Emma is sidelined by swelling
KEVIN
Recently engaged, diagnosed with HAE in early 20s
One of the biggest challenges of having HAE is there are times where I may have to cancel plans last minute. I can’t control when and where I get my attacks.
See how Kevin manages his frustrations
HAE, hereditary angioedema.
Discover helpful resources.
Join us in finding a path beyond the burdens of HAE.
