This content is not meant to replace a conversation with a healthcare provider. A healthcare provider can evaluate your symptoms and make the appropriate clinical decisions.
Discover a World of Resources
For patients with HAE & caregivers
You’re not alone—connect with the HAE community
You’re not alone—connect with the HAE community
Angioedema Centers of Reference and Excellence (ACARE)
The ACARE program is a joint initiative by GA²LEN (Global Allergy and Asthma Excellence Network) and HAEi (Hereditary Angioedema International) with the aim of developing and accrediting an interactive network of centers of reference and excellence in angioedema management.
Hereditary Angioedema Association (HAEA)
A nonprofit advocacy organization serving people with HAE and their caregivers. Through a passionate commitment to the HAE community, they offer a variety of services and resources that further HAE education, clinical research, community engagement, access to medications, personalized support networks, and a wide range of services to help people living with HAE lead a normal life.
HAE International (HAEi)
A global nonprofit network of patient associations dedicated to improving the lives of people with HAE. They are a group of compassionate patients with HAE and caregivers who make it their life’s work to raise awareness of HAE, improve time to diagnosis, and fiercely advocate for approval and reimbursement of lifesaving therapies to everyone suffering from HAE.
HAEi LEAP
An educational program developed by HAEi that allows young people to learn new skills and develop as individuals and advocates.
National Organization for Rare Disorders (NORD)
A comprehensive resource for people with a rare-disease and their caregivers, including rare-disease facts and statistics, information on living with a rare disease, mentoring organizations, improving clinical care, and community support.
NORD and the NORD logo are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity.
HAE, hereditary angioedema.
Resource
Resources
Tracking Your Attacks
Tracking Your Attacks
HAE TrackR app from HAE International
Record your treatment
Track attack development and improvements
Set reminders for preventive treatment
The third-party resource cited above is for the reader’s information only. Pharvaris does not endorse and is not responsible for the content included in this resource.
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